Baby Minnie's fund for new treatment
Parents of baby Minnie who has rare eye disease causing blindness have set up ‘Minnie’s Miracle Fund’ to raise money for research into the condition
Caroline and Mark Fogg, parents of Minnie, who was blind from birth in 2018 after inheriting the rare eye disease Leber’s Congenital Amaurosis, have set up a fund named ‘Minnie’s Miracle Fund’ with eye research charity Fight For Sight to raise money for research into the condition.
Leber’s Congenital Amaurosis (LCA) is a rare eye condition affecting 2 or 3 people in every 100,000 in the UK; it affects the photographic plate at the back of the eye, meaning images aren’t sent to the brain properly. The disease affects people at a very early age and currently there is no cure for it.
Minnie was registered blind at the end of December 2018, and as a New Year’s resolution, parents Caroline and Mark Fogg decided to raise as much money as possible to fund research into the disease. Rallying friends and family for support, they will kick off their fundraising efforts with the Great Manchester 10K Run in May 2019, alongside nine other friends and family members.
Minnie’s mother, Caroline, said: “Receiving Minnie's diagnosis was devastating. It felt really huge and life changing; we felt so sad. Working with Fight for Sight has given us real hope. It’s given us the opportunity to raise money and awareness to help Minnie and all sufferers of LCA – and we’re actually doing it. Family funds are amazing things when it comes to pushing forward science and innovation to cure these awful conditions. We hope to raise as much money as we can and would love to achieve £10k in the first year!”
Caroline and Mark will now be raising money to support vital eye research that could lead to the next breakthrough for Minnie’s condition. There are currently two million people living with sight loss in the UK.
Ed Jackson, events manager at Fight for Sight, said: “A huge thank you to Caroline, Mark and all of our runners for 2019. We know that sight loss doesn’t have to be inevitable – research we have funded is already showing promising results for patient benefit. It’s through our fantastic supporters raising money for research that we will find the next breakthrough.”