Rose's fight for sight

15 November 16

written by:

Heather Fanning

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Rose’s story living with Stargardt macular dystrophy

Rose Roberts was diagnosed with Stargardt macular dystrophy when she was seven years old.

It was when Rose started to make comments about having difficulties at school, like the lights were too bright or that she couldn’t see the board that Rose’s mum, Tina, decided to take her to a local opticians for an eye test. Following this appointment they spent weeks going back and forth to Moorfields Eye Hospital having several tests for it to be confirmed that she had Stargardt’s.

Rose said: “I thought there were things wrong but I thought that everyone else was seeing it too because I didn’t know that it was a condition.”

The condition means that Rose has no central vision and relies on her peripheral vision – so she can make out shapes but can’t see detail.

On receiving Rose’s diagnosis the family didn’t know anything about the condition or anyone who had it, until they were introduced to Fight for Sight and learnt about the research that Fight for Sight was funding.

“Tina said: We believe Fight for Sight can achieve an awful lot on behalf of us and also for other families in the same position. We believe there is a cure out there, we’ve just got to raise enough funds.”

Stargardt macular dystrophy

What is it?

Stargardt macular dystrophy (or Stargardt disease) is a childhood inherited eye condition that affects the macula. This is a specialised region of the eye that we use for seeing straight ahead and in detail. It’s the central part of the light-sensitive layer at the back of the eye (the retina).

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