Team Tilda

Matilda is 9 years old and has a corneal dystrophy.

Team Tilda are fundraising for pioneering research into the condition to help Matilda and others like her.

Matilda's parents Claire and Julian Henley set up Matilda's fund, Team Tilda. This is their story.

Matilda was first identified with problems at age 18 months old in excruciating pain. Matilda's eyes are covered in tiny microcysts which can dry out and burst causing extreme pain and blurred vision. Matilda's consultants have tried various treatment options in the hope of preventing erosions occurring though none have been successful. She currently manages with lubricating eye drops hourly during the day, thick ointments at night and bandage contact lenses. 

As parents it is incredibly frustrating not being able to solve your children's problems. Seeing your child in pain and distress and being helpless to prevent this occurring is agony. As Matilda's parents, we feel we need to do something and by raising awareness of eye conditions and Fight for Sight, we feel we are helping Matilda.  This fund will specifically be for research into corneal dystrophies, the condition that Matilda has and we hope that with your help, one day a cure may be found.

If you fancy fundraising with us, please do get in touch: teamtilda@yahoo.com. A 5km fun run, a bike ride, a cake sale, what ever your idea, we would love you to help support us in 'Team Tilda'!

Support Team Tilda

Make a donation
  • Setting up a Fight for Sight Family Fund

    Fight for Sight funds pioneering eye research to help create future everyone can see. Our research programmes are currently developing ways we can better diagnose, prevent and treat eye conditions such as glaucoma, age-related macular degeneration, diabetic eye disease and childhood blindness. Even rare inherited diseases. We believe all sight loss is not inevitable. It is only through medical research we will make sight loss a thing of the past.

    Setting up a Family Fund, like Team Tilda, is a great way to fundraise as a family or group for eye research.
    Find out more